Medical Information

The Painted Turtle is pleased to serve campers with many different medical conditions. Summer campers can be between the ages of 7 and 16. Family weekends serve families of campers ages 6 to 17 (at the time of camp).

Please see our Camp Calendar for the dates of sessions offered each year.

Campers for all sessions must meet the following eligibility criteria:

  • Minimum developmental age of 5 years
  • Must be able to function and participate in a group setting
  • Must be able to communicate needs independently
  • Able to be away from family members for a limited period of time

Please be advised that no child is guaranteed to be accepted to camp. Applications are reviewed and acceptance is based upon health care needs, space, and staffing ratios.

Session Specific Eligibility Criteria:

Note: One camper with cystic fibrosis will be considered for sessions marked with * 

Family Weekends – Medical Conditions Served:

Liver Disease and Transplant, PIDD, TPN, and IBD
February 23-25, 2018

  • Liver Transplant
  • Small bowel transplants
  • G-tube feeds with a primary GI diagnosis
  • Crohn’s and Ulcerative Colitis
  • Liver Disease
  • TPN dependent
  • PIDD, SCID
  • Mitochondrial disease

Pulmonary Hypertension
March 9-12, 2018

  • Pulmonary Hypertension

Neuromuscular and Genetic
March 23-25, 2018

  • Cerebral Palsy
  • Ventilator dependent
  • Limb deficiencies
  • Craniofacial Conditions
  • Neuromuscular conditions
  • Genetic Conditions
  • Severe burns
  • 1 family with a child with Cystic Fibrosis

Spina Bifida
April 6-8, 2018

  • Spina Bifida
  • Paraplegia/ Hemiplegia: includes children with spinal cord injury resulting in paraplegia
  • Ataxia
  • 1 family with a child with Cystic Fibrosis

Rheumatic Diseases and IBD
April 20-22, 2018

2018 Fall Family Weekend Dates will be released prior to Summer 2018. 

Summer Sessions – Medical Conditions Served:

Skeletal Dysplasia and MPS *
TBD

All children diagnosed with skeletal dysplasia under the LPA guidelines (http://medical.lpaonline.org) are eligible. This includes those with a diagnosis of Mucopolysaccharidoses (MPS) and Mucolipidosis. One camper with Cystic Fibrosis will be considered for attendance at this session.

Arthritis and IBD
TBD

Campers with all pediatric rheumatologic conditions per the Arthritis Foundation. Note: To decrease immunosuppression, we recommend no steroid taper two weeks prior to or during camp, must be stable on Humira or Remicade dosing.
Campers who have Crohn’s, ulcerative colitis, or IBD.

Kidney Disease and Transplant
TBD

This includes post transplant campers, and a limited number of those on peritoneal and hemodialysis.
General nephrology patients with decreased kidney function will be considered if space permits.

Special Diagnoses 1 *
TBD

This is a session that includes a limited number of campers with mixed medical conditions as follows:

  • Children with neuromuscular disorders who require support for most activities of daily living.
  • Children who require ventilator support
  • Epilepsy-intractable, VNS
  • Chronic Lung Disease
  • Quadriplegia
  • Cerebral Palsy
  • 1 Camper with Cystic Fibrosis will be considered

Special Diagnoses 2 *
TBD

  • Children with neuromuscular disorders who require support for most activities of daily living.
  • Craniofacial conditions
  • Muscular Dystrophy
  • Ataxia
  • Spina Bifida- Self Cathing
  • Complex Epilepsy
  • Mitochondrial Disorders
  • Cerebral Palsy
  • Paraplegia
  • Limb Deficiencies
  • Severe Burns
  • MPS
  • Calve-Legg-Perthes
  • One camper with Cystic Fibrosis

Hemophilia/vWD/Thalassemia
TBD

Campers with Hemophilia A and B are eligible (though not carriers). In addition, those with von Willebrand Factor Deficiency, transfusion-dependent Thalassemia and Diamond-Blackfan Anemia (DBA), Aplastic Anemia, Blood Dyscrasia (not cancer), Documented factor deficiency for females, Endocrine/CAH, Rare Genetic Platelet Disorders, or Hypopituitarism may apply.

Liver Disease and Transplant, PIDD, TPN, and IBD
TBD

Post-transplant campers >3 months out are eligible. Children with small bowel transplants are considered, as well as a limited number of those with liver disease. Campers reliant on G tube feeds or TPN are also eligible, depending upon space and staffing. Children with Crohn’s and Ulcerative Colitis or IBD are considered as well. Those with PIDD are eligible with Immunologist approval (SCID: must be successful post transplant, CGD and MCID considered on a case-by-case basis.)

Sibling
TBD

Siblings of children with eligible medical conditions ( who are free from chronic medical conditions). Siblings must attend camp separately from sibling with medical condition.